Out of the Shadows

[ErgoProxy]

As most of you already know, Amy Lee is the American Chairperson for the Out of the Shadows, an international campagin aimed at spreading awareness about epilepsy. The question that comes up most of the time by fans is "Why is Amy associated with this?" The reason why is that Amy's brother, Robby, was diagnosed with it.

Here are some links you should check out if you'd like to know more about OOTS!

http://www.OutOfTheShadows.com [Official site]

http://www.myspace.com/outoftheshadowsaware [Myspace Profile]

http://groups.myspace.com/outoftheshadows [Myspace Group]

If you are able, please donate to OOTS [you can do that via the official OOTS site] or you can donate to the Epilepsy Foundation, https://www.epilepsyfoundation.org/howtohelp/donate.cfm

The money will go towards researching epilepsy to find out how it works and how it can be cured!

You can also help spread awareness by talking to your friends about it, putting up banners on your myspace, etc.

[%%Laura%%]

I wonder if she'll be doing any more conference type things for the campaign in the near future.

[ErgoProxy]

Me too, things have been pretty quiet recently, but Amy has been pretty busy with everything relating to TOD.

[JamesMcFenlon]

Oh Kewl thanks for all the info.

[fearlesst15]

*is proud to have the OOTS myspace page on her top friends*


in 9th grade for my intro to research project for the exploravision contest, we had to make an invention to help society. so i came up with the idea for my group of the S.R.D (seizure regulator device). you get to use future technology ideas rather than things that already exist. this was all before i knew about ev, but since then ive been intrigued by epilepsy and wanted to help find a way to "fix" it.

so yeah, everyone help spread the knowledge of the foundation and help correct people's incorrect assumptions about epilepsy.

[Unrequited-Amz]

I think this is so great, raising awareness. Coz awareness really does need to be raised - there was a boy at my school who had a seisure during sport, and noone knew what to do. He was okay, but that didnt stop him from cracking open his chin. It was horrific.

If everyone knew at least a little bit, I wonder how much lives would be saved.

[emix33]

It seems to me to be brilliant that amy has this foundation, all the big artists make something like that

[Q<3EV]

I am not sure that many are aware of Amy Lee's foundation for Epilepsy, Out of the Shadows.

You can learn all about it at www.outoftheshadows.com (http://www.outoftheshadows.com)

I really love the site and every since Amy has made the foundation, I have been doing a lot more just in my city to help support Out of the Shadows and take a stand to help those with Epilepsy. My sister has it and I am really glad that finally someone took a stand for the issue. It just happened to be my favorite person as well. :p

So just check out the website and write back if you have Epilepsy or anyone you care about has it. I think it would be really neat to just be able to talk about the issue on here.

Even if you haven't heard about it or have any connection to it..Check the website out and write something on here so we can talk about it. Make a difference!

[Carmen]

Sorry <3AMYLEE<3EV but a thread already exists on the Out of The Shadows campaign here (http://www.evthreads.com/showthread.php?t=886)

[KrisW]

In my other life (normal person) I travel around the Eastern Seaboard of the US, doing my Hobby, which is flying Giant Scale aerobatics planes in competiton. Since i found out about Evanescence the logo has been on my Planes, and now that OutOfTheShadows is up and running, it's been added as well.

I get lots of questions about the site (usually about is it a "Gay" coming out site), but hand out a small flyer I've prepared that includes Epilepsy awareness, and first aid, as well as Instructions on how to reach the Out Of The Shadows site, and what it stands for.

I don't know how many people actually have gone to the site from this, but with Pics of the graphics on several RC sites, I'm sure the interlink of hobby and this Cause is not missed.

I've included a couple of pics of my stuff. .

[korrigan]

I want to thank everyone here who has donated to Out of the Shadows. I speak as someone who has suffered from ignorance, in the past and currently, and I know I very much appreciate all the work Amy has done (it was so awesome for me to have someone I already admired fight for my cause)

I don't have true epilepsy, as in grand mal seizures, I have petit mal (absence/blackouts), but even that is bad enough that epilepsy is something I understand. I have been the girl with seizures, not a great epitaph to get you through elementary/middle/high school.

Out of the Shadows ROCKS MY WORLD!

CHECK OUT THE SITE! LEARN! SPREAD THE WORD!

And thanks again. :)

[KrisW]

I want to thank everyone here who has donated to Out of the Shadows. I speak as someone who has suffered from ignorance, in the past and currently, and I know I very much appreciate all the work Amy has done (it was so awesome for me to have someone I already admired fight for my cause)

I don't have true epilepsy, as in grand mal seizures, I have petit mal (absence/blackouts), but even that is bad enough that epilepsy is something I understand. I have been the girl with seizures, not a great epitaph to get you through elementary/middle/high school.

Out of the Shadows ROCKS MY WORLD!

CHECK OUT THE SITE! LEARN! SPREAD THE WORD!

And thanks again. :)

YOU are the reason, the special reason, for everyone to learn, understand and accept people with Epilepsy, korrigan. I hope the site, and our efforts, help.

[Deteriorate]

Hopefully Evanescence will do a benefit concert with some artist.

[DarkStar]

that would be really cool. something like that would really bring epliepsy out of the shadows. so many people have no idea what its about. yet they could tell you who sang what song. using music to spread knowledge is a great idea!

[korrigan]

Can someone suggest that to them? Because I'd seriously pay a ton of money (of which I have none) to go. I can't believe they haven't done it already. Though it is Amy's cause, not the band's, and it may be some legal-agent crap holding her back. Hate those lawyers!

[Q<3EV]

There are threads on here about the Out of the Shadows foundation but I was just wondering if anyone on here has epilepsy or a loved one or anything. I was also wondeirng if anyone has "made a difference" by posting stuff about the fund in their newspaper or anything..Just wondering what everyone has done in effect of Out of the Shadows.

My sister has Epilepsy so I am really glad that is just happens to be Amy Lee who is supporting it :)

[CaptainHejah]

I have had seizures since I was 5 years old It's not technically epilepsy as epilepsy generally involves response to light patterns but I have had alot of grand mal seizures throughout my life. I am so greatful for Amy's work with the Out Of The Shadows foundation not just for all the research that is being done (which is AMAZING) but also for the awareness aspect of it. You'd think people would be sympathetic to a medical condition but I experienced alot of cruelty from classmates when I was in highschool. Thank you so much Amy!!!

[Evanescent]

Hi, I'm obviously a new poster here but I also recently went through the Out of the Shadows site and was really moved. I didn't know half as much as I thought I did about epilepsy and I think it would really be great if the word could just get spread around (although monetary contributions are nice also). It's so easy to get information out online if enough people get behind it. I know there are already MySpace groups for it, but wanted to let you know that I created a group on the Facebook network (the link is below), and anybody is welcome to join and invite others that they know to join as well.

http://vt.facebook.com/group.php?gid=2232544817&ref=nf

[ghetto fab]

I know someone down in FL who said that he heard a PSA for OOTS on the radio about 15 min. ago. I was stoked b/c that's the first time I've heard of anyone actually hearing one. Guess the effort isn't dead after all. :eek:

[The Reaper]

Has anybody seen these?? I was watching FOX 11, and when I changed the channel, my friend told me that he just saw a commercial w/ Amy for OOTS..................He thought i saw, but I didn't. Has anyody else seen these?? YouTube fails to have them.

[Daniel_P_16]

I haven't seen any commercials for the OOTS campaign yet. However, now that you have mentioned that your friend saw an ad, I know now to keep a close look out for one myself.

[Zebra]

it wasn't this, (http://www.youtube.com/watch?v=8itEeEV4Lo0) was it? (I kinda doubt it, but eh)

[Fade2Black]

it wasn't this, (http://www.youtube.com/watch?v=8itEeEV4Lo0) was it? (I kinda doubt it, but eh)

Wtf?? Ive NEVER seen that before! Is it on the website? It looks kind of old..

[The Reaper]

No it wasn't that one.


It makes sense 'cuz it was playing when the kid shows were on (I was watching a science show0

[Evhead007]

darn! i haven't seen any...:(

but at least is support the cause:D :p

[Hollee]

I'd love to see it and see if it's new.

[PirateQueenx]

Yeah i'd love to see that :D.
I've not seen anything like that yet though, except it might be just in America, because your adverts are different I think =/.
Someone should well put it on youtube :D.
I wanna show it to my mom, because I really want her to donate to it =].
x.

[Ciera]

it wasn't this, (http://www.youtube.com/watch?v=8itEeEV4Lo0) was it? (I kinda doubt it, but eh)

Wow. I hadn't seent that before. She's so amazing for doing this. I havent seen the advert if there was one i doubt they would show it in the uk :(

[casper1830]

I too have epilepsy. I wasn't born with it. Actually, I did not have any seizures until I was 20. No one knows the initial cause nor why I continue to have them. I have certainly experienced the stigmas associated with epliepsy. Individuals who know nothing or very little about the medical condition will look @ me as if they expect me to drop and have convulsions right in front of them! I am extremely grateful that my seuziures are medically controlled. I won't go into detail...
Here is another PSA: http://www.youtube.com/watch?v=vvX65ci-vBg

Also the bottom of this page has brief radio PSA. The last one is the longest.
http://www.outoftheshadows.com/MainNavPress.cfm

[fearlesst15]

ive heard the psa but dont remember seeing the video

ill be linking that to my myspace and facebook.

[SheriffScabs]

Has anybody seen these?? my friend told me that he just saw a commercial w/ Amy for OOTS.
No. I havent seen any television ads for it. But a few of the radio stations around town play a really short 15 second radio commercial for it. It's a totally cool cause. I've already donated a bunch of money and plan on doing a whole lot more, if I get the propper permission first. But we'll see what the future holds. Right now, it's good enough to just spread the word.

[LikePixieDust]

I hate to bring up an old thread, but I wasn't sure if this deserved a thread all for itself, so I decided to post about it in here.

My sister was watching the music channel Fuse, and all the sudden she started screaming at me to come downstairs because Out Of The Shadows was on TV!

Turns out, they were showing a commercial about OOTS and epilepsy awareness. I only saw the last few seconds of the commercial, but in the part I saw, they showed a short clip of Amy talking about epilepsy and the importance of educating people about it. Then they showed some other woman saying that to learn more about epilepsy, go to the OOTS site. Then they showed a logo that said "In The Know" in big, bold letters.

So yeah, OOTS commercials aren't a myth, afterall! This was the first time I'd seen/heard anything about OOTS on TV, so I just thought I'd let you all know so you can keep your eyes open for it. :D

[Katya]

They used to have the commercials up for viewing online before they redesigned the website. But that's awesome that they're finally getting played :) There just isn't enough awareness out there for it, and there really needs to be.

[rock22chic]

i showed the commercial yesterday to my mom and she said that she's happy that so many famous people are taking advantage of their stardom and doing something right with it... i guess amy and ev (by asociation in her world) won some points there... i guess she likes them more now...

i'm still trying to show them on class so more people become aware...

peace...

[I_<3_Evanescence]

any one got the commercial my mum as epilepsy and i would like to show her it.

[Thatiana]

casper1830 thanks for the links ;)

[AeternusAmatorius]

I too have epilepsy. I wasn't born with it. Actually, I did not have any seizures until I was 20. No one knows the initial cause nor why I continue to have them. I have certainly experienced the stigmas associated with epliepsy. Individuals who know nothing or very little about the medical condition will look @ me as if they expect me to drop and have convulsions right in front of them! I am extremely grateful that my seuziures are medically controlled. I won't go into detail...
Here is another PSA: http://www.youtube.com/watch?v=vvX65ci-vBg

Also the bottom of this page has brief radio PSA. The last one is the longest.
http://www.outoftheshadows.com/MainNavPress.cfm


I know two people who have Epilepsy in my school. One is a close friend and one is an aquantience's mother.

My one friends seizures are brought on by strobe lights.


If you don't mind me asking, since you weren't born with it, did you have a sort of accident or something where you hit your head? Because my understanding is that if you weren't born with epilepsy, and accidentaly hit your head the wrong way you can trigger something in your brain and it results in epilepsy. I don't know how correct this is because I heard it somewhere so I donno... lol. I guess that was a pointless thing to say but if I'm wrong please correct me.

Edit: I remember where I heard it. On that one episode of House where that guy got into an accident when he was 10 and hit his head and he's like this big concert pianist and he gets the right side of this brain cut out because of seizures or something. This should be correct though because they have to have medical advisors on set for a medical show. Any medical show.


That comercial gave me chills.

[LadyChaos]

My sister has epilepsy, she has however, not had any seizures in the past 5-7 years and is completely off of her meds, so YAY for her. She had her fist seizure at three, it was accompanied by a high feaver andleft her only slightly brain damaged...she has speach problems and that's it. Her epilepsy can be set off by stobe lights too, but she tends to avoid anything with flashing lights. She also gets motion sick sometimes in movies and the like.

[Thatiana]

If you don't mind me asking, since you weren't born with it, did you have a sort of accident or something where you hit your head? Because my understanding is that if you weren't born with epilepsy, and accidentaly hit your head the wrong way you can trigger something in your brain and it results in epilepsy. I don't know how correct this is because I heard it somewhere so I donno... lol. I guess that was a pointless thing to say but if I'm wrong please correct me.

That's what happened with my uncle when he was a kid after an accident playing with another uncle mine.
I saw him having seizures three times.

[everybody's sacrifice]

http://www.youtube.com/v/8itEeEV4Lo0

sorry ppl i was trying to put a vid up but instead i put the link. it is amys video for the out of the shadows campaign

[Julieann]

I don't know what you meant to do there, but it came out as nothing but code.

[everybody's sacrifice]

I don't know what you meant to do there, but it came out as nothing but code.


lol i saw lol so i edited and just put the link lol

[nadinetannous]

lol if you were trying to put a video up instead of a link lol then when you come to post a message, there is a little button that says youtube, right next to the spoil button lol.
Sorry with the lol's- I couldn't resist. Reading your post (patience) gave me the impression that you were laughing hysterically while typing.

Nadine.

[Froskest]

I think what Amy's doing is great!

[«His Divine Shadow»]

I have (very mild) epilepsy... but in my case it probably is caused by demonic possession ;)

[ishkabibble]

I've gotten migraines frequently since I was very young, and when they finally diagnosed me they said I had all of the symptoms of epilepsy except two, I don't have seizures, which I'm greatful for. They do quite often give me epilepsy medicine to treat my migraines.

[«His Divine Shadow»]

I used to have seizures all the time when I was very young. Haven't had any that I can remember for the last 20 years... I stopped taking medication for this when I was about 12 or 15 years old. While I was on the meds they used to give me electro-encephelograms all the time which I can only describe as having a sort of wire head net with drawing pins stuck into my skull while they asked me daft questions... it kind of freaked me out. I also had to get blood tests every week of my life. I reckon I must have lost about 16 litres of blood through needles in the first 15 years of my life - probably what first triggered my pre-occupation with pain :). The medication was affecting my brain and my ability to concentrate/learn in school (or so they tell me - from my perspective I never felt like anything was wrong, but apparently I was "spaced out" all the time. Lol!). Flickering lights is what sets me off. I just avoid anything flashing like strobe lights and such. Occasionally I can be in the vacinity of something flashing, and I just start feeling really nauseous, so I just leave and then everything is fine again.
Yay! this is my post number 1111! :D

[ErgoProxy]

So, who wants to be on the OOTS top friends list? Anyone? The first 8 people to send a message to http://www.myspace.com/outoftheshadowsaware saying that they want to be added, shall get the spots, asap. :]

Btw, we have a new person helping out with running the myspace page, %Laura% (http://www.evthreads.com/member.php?u=27)!

[%%Laura%%]

^ Oh, that's why people were suddenly asking to be in the top 8. I get it now.

There are still some spots left.

[roboINoz]

When Evanescence played here in Sydney my friend Patricia and I went to the saturday night show. Pat had suffered a fit (she suffers from epilepsy) just an hour b4 the show but insisted we go anyway. well done to the venue staff btw, who asked if she was ok and when we explained what had happened, they moved us to the front row at the side of the stage, near the First Aid post, just in case. Anyway Pat gave one of Amys' people at the side of the stage a necklace she had made, explained the significance (appreciation of her effort openly supporting epileptics from a sufferer) and was virtually fobbed off when she asked if it could be passed on. considering Amys' great support of epilepsy sufferers this attitude was disappointing. We are curious though, as to whether the guy ever passed the necklace on or indeed mentioned that this dedicated fan had even made the effort to turn up. I have no doubt Amy would understand the state of someone after a serious fit as many of the fans would appreciate it was a big effort. we are curious though.

[Amber192]

As we all know Amy Lee is the spokeswoman for the epilepsy foundation, so I was thinking wouldn’t it be kool if she wrote and brought a single out and all the money raised from the single all goes to the foundation to help people with epilepsy.

What do others think?

[Evanescencefan4life]

that would be awesome :)

[Chiara]

It would be sweet and tender!

[Thatiana]

As we all know Amy Lee is the spokeswoman for the epilepsy foundation, so I was thinking wouldn’t it be kool if she wrote and brought a single out and all the money raised from the single all goes to the foundation to help people with epilepsy.

What do others think?

I think it would be really cool

[Amber192]

I think it would be really cool

just a shame she more then likely wont be reading this so no chance of it happening :(

shame really. :|

[Cryztal]

As we all know Amy Lee is the spokeswoman for the epilepsy foundation, so I was thinking wouldn’t it be kool if she wrote and brought a single out and all the money raised from the single all goes to the foundation to help people with epilepsy.

What do others think?

That would be totally awesome! i would love it if she did that

[BadWolfBay]

Me and my friend were talking about this in drama and we both said if we had to pick a charity or what eva u wanna call it we'd pick this one

[SpiritHawk7]

OMG! This morning, (I have a cold and took sleep medicine last night) around 5 am, was semi consious like always, where I can still dream but awake at the same time, and I'm listening to the radio, I switch back and forth between stations until I find one with a good song playing. Well, I did and didn't realize it went to a commercial as I was trying to fall back asleep, and at 5:23 am I heard Amy talking. For a second, I though I was dreaming or something, or that the medicine was playing with me, and 20 seconds later I realize I was really hearing it! It was only a minute long, but it went really fast. It was Amy talking about OOTS. In it, they looped the piano intro to MI so it ran throught the entire commercial, and Amy didn't say it was her brother, just someone that was really close to her, or somewhere close to that line. I was so totally freaked/suprised to hear it on the radio, for I never have before, especially now. I'm glad it did, to help spread the word.:p

[xJenna1981x]

If you ever see this Amy I just want to thank you for all the great things you are doing to help people who have epilepsy. My mom has it and it just means so much to me that someone is fighting for the cause:) Maybe someday because of you there will be a cure and nobody will have to suffer from it. I just wanted to thank you from the bottom of my heart. You are amazing (((((Amy))))

[Trina Segelbaum]

I think what Amy is doing is just, one of the most selfless things a person can ever do!! She is Such an insperation!! I think this is an amazing thing, that ppl can learn about this condition, and know what to do in certin situations!! In my city, I am a huge supporter of the Epilepsy foundation!! My birth little brother also as well has this condition! He use to get up to four or five seizures in a day, but he is now on certin medication to help contol that, so he doesn't get that as much!! Other then that, he does what any other child his age does!! ;) :D I'm sure to alot of ppl, its the most scarriest thing, to see a person having a seizure, but if you do alot of research on the condition, and understand it, then its not so bad! I think there should be SO much more people just like AMY!!! She always has THE biggest heart!! YOU ROCK AMY, AND YOU ARE ALWAYS # 1!!!;) :p :D :) :cool:

[DJHybrid]

If you've read my thread, you know i dont have much money...but i just sold my trivium autographed drum head for this..and i donated 300 dollars.

Out of respect for not only the people with epilepsy. But amy and her hardships, and anybody that has to face something like this.

[ErgoProxy]

^ That's really commendable. I don't mean for this to sound cheesy, but the world could use more people like you.

[pikapika22]

If you've read my thread, you know i dont have much money...but i just sold my trivium autographed drum head for this..and i donated 300 dollars.

Out of respect for not only the people with epilepsy. But amy and her hardships, and anybody that has to face something like this.



DJHybid that was very generous. i too always wanted to make a donation in the name of amy lee (evanescence.com), after reading your post i finally made a modest donation of $50 to help the cause.

i found this researching the organization

foundation newsletter, and article and pic
Amy Lee of "Evanescence" to champion epilepsy cause:
http://www.epilepsyfoundation.org/local/kentuckiana/upload/efky1Q06%20newsletter.pdf

[tjamieson]

I just have to send a very heart felt message out to Amy for her move to widen the information available to those with, or those dealing with loved ones with epilepsy.

My sister has had this condition for the past 5 years. Apart from the mixed emotions that my family have gone through there is now a very real chance that my 2 month old daughter could also have this condition.

My sister has struggled through school, TAFE and University because of this condition, not to mention the lengths that she has had to go through to get her probationary license (in Australia).

I would love to reach out to anyone that has been touched by Epilepsy to donate to Amy's charity fund in a hope to raise awareness and to someday develop a cure to this debilitating condition.

[~UtopianAngel~]

Does anyone know what the email address is for "Out Of The Shadows"? I need it for school purposes ??

[pedram]

hi guy's
about out of shadows i translate all inform about out of shadows to persian language from ev persian forum and everybody say that they proud to be amy is leader of out of shadows .....

[BadWolfBay]

Does anyone know what the email address is for "Out Of The Shadows"? I need it for school purposes ??

We Are From The Same Class And I Need It To! Does Anyone Have It, I've CheckedThe Website But Nope Nothing... Anyone :(????

[Jcks]

Finally a celebrity that gets involved with epilepsy. My younger brother had his first seizure at 15 months. He struggled with this affliction for a long time. My mother had people tell her that he wasn't really having seizures, that they were temper tantrums (these were neurologist that told her this). Finally, I decided I was tired of my mother being told this and went to an appointment with him. (I had been to a lot with them, but that was when I was not yet an adult). I was 7 months pregnant with my oldest son and I went in with my mother to see his doctor. I told him, that for 16 yrs I watched as my brother would twitch and flail with seizures and there was no way in (rhymes with well) these were temper tantrums and if he wasn't competent enough to help my brother than to send him to Rochester Minnesota to have him evaluated there. After my little outburst, he decided to send my brother to the local hospital and had him hooked to an EEG machine ( http://en.wikipedia.org/wiki/Electroencephalography ) and for almost a week they monitored him and the doctor decided to send him to Rochester because he was in fact having seizures. Two weeks later, and one month to the day before I had my son, he had brain surgery where they removed 3 inches of his brain that was dead and causing his seizures. He is still on medicines to try to keep him from having any more seizures and on a medicine to keep him calm. The part of his brain they took out affected him to the point that he has angry outbursts. The doctors in Rochester told my mother that if he was left without the surgery he wouldn't have even lived another year. It has now been almost 14 yrs later and we have buried my mother. I continue to be the advocate in our towns and our family. My mother's family told her that she would never be able to take care of him and that he needed to be institutionalized. Thank God my mother didn't listen to them. I thank God everyday for the mother he blessed my brother and I with. She raised us on her own and did a darn good job doing it.



(walking in the shadow of a great mother and walking out in front of a brother with epilepsy, and trying to be a good mom to my five kids)


Jcks

[Rain listener]

:o
That is truly a miracle. Thank God for your mother's devotion.

[ErgoProxy]

We Are From The Same Class And I Need It To! Does Anyone Have It, I've CheckedThe Website But Nope Nothing... Anyone :(????

Emails for OOTS go through the Epilepsy Foundation, so this is the link to the email:

http://www.outoftheshadows.com/MainNavContact.cfm

[RTG7192]

The Life of an Epileptic

We are a unique breed
To be normal is all we plead.
For that wish runs away,
Because our true nature will haunt us till our last day.

For some, hope stays,
But for others, from this path we cannot stray.
For death to us is near,
For we do not know how long we may be here.

Because all it takes is one,
For our lives to be done.
For some the near death experience is real,
And for those the scars will never heal.

For this thing we can barely control,
And on us and others, it takes a toll.
For all we can do is guess and hope for the best,
And pray that God will take care of the rest.

For this is the life of an Epileptic,
For this is my cross to carry, and I accept it.


Insight into the poem:

The writer, whose own life experiences with epilepsy served as inspiration for this poem. "Life of an Epileptic" is a tribute to all struggling epileptics. Not only does the writer mention epileptics who have been cured of the disorder, but also those whose disorder is incurable. Also the writer mentions how the experiences of those watching a seizure are affected as well as those having the seizure. Ultimately the writer underlines the fact that epilepsy, while somewhat controlled with modern medicine, is something that becomes a part of a person that they live with.

[tears4life]

Having epilepsy isnt a easy thing to live with. There is pain there. Its not just a simple lil boo boo, its pain all the time and sometimes it gets so painful I cry!
If I was the richest person in the world, I would show my support by donating money, but how can I when I need the money to buy my medications that cost over a thousand dollars a month? Its hard....then the dr.s bills....can you imagine what its like for someone who needs blood work or a EEG and cant pay for it? I needed a CAT Scan and couldnt pay for it, so I left the building. I got turned away from a dr. That hurts. It also hurts when you want to talk to someone, and cant. Either its cause they look at you weird, or whatever.....theres something that freaks them out to where they dont want nothing to do with you. My friend saw me have a gran mal seizure and it freaked her out big time. She quit being my friend. :( We need to reach out to people and let them know that there isnt nothing wrong with epileptics, and to show them how to help someone who is having a seizure! Come on....please!:confused:

[HangMan]

We know there isn't. Its just an illness (I think that's its classification) and if you care enough about someone you'll work around it, obviousy your friend didnt you need to find someone who does care enough x

Maybe we could try and make Ev's shows epilesy friendly, you know with the strobe lighting?

[Jaded_Whisper]

Guess what I just saw? A commercial on The Fuel Channel with Amy Lee talking about Out of The Shadows. =D

[ErgoProxy]

That's awesome! Does it look like something new?

[Jaded_Whisper]

I'm not sure. It had My immortal playing in the background and Amy was sitting and talking and they were showing video of kids playing and there was a part where they showed her speaking at a confrence type of thing. She mentioned her brother in it too. Let me see if it's on youtube..

[fearlesst15]

this one?

vvX65ci-vBg

edit

and here is the 30 second one that has bmtl playing in the background

FGuAwHVrNB4

and 15 second spot

J7NDc_jKy-Y

[Jaded_Whisper]

Yea, I think it was that one. I'm guessing it's old? I've never seen anything about it on TV before though. Maybe Amy is using her time off to work on this?

[fearlesst15]

yeah it's old. it's been up online or a while. at least a year, i wanna say? i know i had a link to that on my myspace for a long while.

it would be nice to see her actually do something more with it while she's taking a break from ev.

it's just kind of been sitting there. it was like...she made the site and the ads and then was done with it all.

[Jaded_Whisper]

It would be veryyyyy nice if she actually did something with it. Somebody needs to kick her in the butt and tell her to get a move on it.

[dreamchayser]

Having epilepsy isnt a easy thing to live with. There is pain there. Its not just a simple lil boo boo, its pain all the time and sometimes it gets so painful I cry!
If I was the richest person in the world, I would show my support by donating money, but how can I when I need the money to buy my medications that cost over a thousand dollars a month? Its hard....then the dr.s bills....can you imagine what its like for someone who needs blood work or a EEG and cant pay for it? I needed a CAT Scan and couldnt pay for it, so I left the building. I got turned away from a dr. That hurts. It also hurts when you want to talk to someone, and cant. Either its cause they look at you weird, or whatever.....theres something that freaks them out to where they dont want nothing to do with you. My friend saw me have a gran mal seizure and it freaked her out big time. She quit being my friend. :( We need to reach out to people and let them know that there isnt nothing wrong with epileptics, and to show them how to help someone who is having a seizure! Come on....please!:confused:

I can relate to your pain... my girlfriend has been having seizures (both grand and petit mals) for the past 6 years. Her neurologist refused to send her for any tests and would hardly even look at her since she is without insurance. I can't put her on my insurance since we are a lesbian couple and not recognized. She is unable to work, so we try to get her meds, but like you said... sometimes we are paying out hundreds if not thousands of dollars. We sometimes have to look at the list of meds and see what we can afford and see if we can get by on just a few of them.

One thing she wanted to do more than anything else was to meet Amy and the band and see a show. We went to the last show in RI and were front row. Even though she is photo-sensitive, she did not want to be excluded because of her disease. She took extra phenobarb just to keep from having a grand mal (she, however, did have ALOT of petit mals... she was conscious, but was not herself). She also got to meet Amy. She doesn't remember it, but has the autograph to prove she met her.

[fearlesst15]

completely off topic but that is one of the reasons why im pissed the government/states/people of this country wont allow homosexual couples to get "real" marriages as opposed to civil unions. health care is so expensive and to have insurance that could be shared with a lover who is of the opposite sex but not same sex is effin ridiculous.

i hope things get sorted and your girlfriend is able to get the medical care she needs and deserves as a human being and citizen of this country.

and yes i agree - someone please kick amy in the ass and tell her to do some crap with out of the shadows ... maybe something like a benefit/fundraiser.

sell tickets that vary in price for admission and allow different things. and at the fundraiser have a silent auction. invite other celebs. that always draws attention. etc. it's really not that hard to get ideas. you just need someone with power, money, and time to organize it all *cough amy cough*

[whispered_voice]

Homosexualty versus epilepsy erm? indeed off topic

[Katya]

Dreamchayser, that is really, really sad :( How come she can't remember it? Is she still doing okay?

[Zero79]

It would be veryyyyy nice if she actually did something with it. Somebody needs to kick her in the butt and tell her to get a move on it.

I agree, I haven't heard anything new on Out Of The Shadows in like AGES! She deffinatily needs to do more with it, and maybe advertise/support it alittle better, I think T-shirts would rock ;)

[fearlesst15]

back in march of 2007 i made a bunch of oots and my friends and i printed it out on iron ons and wore the tshirts to the ev show in hartford. i made promo flyers and wrote a letter to explain it all to amy and how she really needed to do something with oots.

apparently she never got all the stuff though when i got to ask her about it in december. sooo i remade a tshirt for her and gave her a disk with teh files but forgot the letter explaining it all. here is what i had printed up and the few different shirts i had thought of

http://s35.photobucket.com/albums/d182/csifanatic28/oots/
of course they are just prototypes and i was just hoping to inspire her to do something and expand on the idea.

she loved this tshirt - which is the one i wore and made for her.

http://i35.photobucket.com/albums/d182/csifanatic28/oots/SHIRT1.jpg

[Zero79]

That t-shirt is awesome! I wish Amy would take the T-shirt idea and run with it, I would deffinatley buy one!

[Katya]

Aww I remember those. I think I took your design, Tara, and tweaked it for my shirt a bit:

http://img.photobucket.com/albums/v244/KatyaNoctis/OOTSshirtfronttemp.jpg

http://img.photobucket.com/albums/v244/KatyaNoctis/OOTSshirtbacktemp.jpg

You can see the front of mine in this pic (http://img.photobucket.com/albums/v244/KatyaNoctis/CTconcertwhoring/P3315321.jpg)...it didn't turn out as well as I would've liked but thankfully Heather came to the rescue with some fun glitter lol. (and I look retarded but whatever)

I still have it, too :) And yeah, Amy should really do more with this. I hope she does.

[fearlesst15]

mine is so ridiculously worn out.

first time - we held them up at the show and we're pretty sure she saw the shirt.

then i wore it to when i went to trl and got in but i dont think she saw it.

so i wore it to the meet and greet at nj and finally got to explain the shirt and ask if she ever got the stuff and found out 9 months after giving it to her she never got it.

im wearing it in the pic but you cant see it too well. ive worn it to class and stuff and had people ask about it.

tshirts are great advertisement. people pay to get it so the profits can go to the epilepsy foundation and then people walking around are like mobile billboards and people read that.

i contemplated making these shirts available on an online tshirt thing like cafepress but then id have to charge people a fair amount just for it to make a profit to send off to the epilepsy foundation. that's why i tried bringing the idea to amy because she would be able to work with a merch company like the one that does the merch for their concert shirts (giant merchandise) and it would be a bit more affordable and still get enough to raise a fair amount of proceeds for oots.

http://img522.imageshack.us/img522/9440/l450fefbce47382c12e4e02nv7.jpg

[Katya]

Haha I never realized you were wearing the shirt...I was more focused on the hilariousness around you. Best band pic ever :D But seriously, that's awesome that you wore it...but it really sucks she never got your stuff. You spent a lot of time on them :(

Maybe you could try emailing someone on the Foundation's website and get things going from there?

[Zero79]

Lulz that pic is amazing! and the shirt looks like it's professionaly done :) But yes, try contacting the Epilepsy foundation or something about it :)

[fearlesst15]

i can try emailing OOTS. i know they have contact info on the site somewhere. although god knows how actively managed that is.

maybe i will tomorrow after work stuff. if/when ill do, ill keep y'all updated if anything happens.

[Katya]

I think that, given the attention OOTS has gotten lately, emailing the Foundation rather than OOTS itself might yield better results. But either way, good luck! :)

[dreamchayser]

Dreamchayser, that is really, really sad :( How come she can't remember it? Is she still doing okay?
I think I was standing near you afterwards during RI...I was just near the end of the fence thing on the right, standing right in front of Emma... my girlfriend was the one who asked Amy if her phone fell down Amy's shirt. :o

She doesn't remember any of it... she has different types of seizures, and the type she was having that night were the kind of ones that are like "the lights are on but no one is home"... she is conscious and talking, but not making sense, almost like if she were drunk. It's hard to explain... she has no control over what she says/does. Those were triggered by the strobe lights. (Especially from the first act at the end.. OMG, they had strobes going for what seemed to be 5 minutes straight!) The only part of the concert she remembered was during TOO when Amy walked over to our side right in front of us (we were in front of Terry) and sang "You know you're not the only one...."

She is ok now... they have her on meds and they seem to help alot. I told her about her asking Amy if her phone fell down her shirt and she laughed so hard.... she wishes she remembered that. But, I did make sure to get lots of pictures of the concert and one from standing in sub-zero temps for hours.. we then drove from RI back to MD... an interesting drive. lol.

[Keyja]

The OOTS website isn't looking like itself AT ALL.

I'm wondering what happened? Is Amy still "running" the campaign or anything?

I'm confused.

[FFXSoul91]

Woah! It seems the domain has expired.

That's too bad.

[Keyja]

Woah! It seems the domain has expired.

That's too bad.

Oooh. I get it now. ;)

[Dan]

Obviously someone forgot to pay for the domain for another year. I remember last year (or it could have been the year before) the same thing happened. It was put back up a few days later.

[TomatoSoupIsBlue]

I'd just like to state that I'm really glad Amy is involved with an epilepsy campaign.

My mom had eplilepsy her whole life until just a few years ago, (yay experimental brain surgeries!) so you can imagine how happy I was when I first heard that my favorite singer was heading something like this. Yay Amy! :party:

[Broken Rebel]

So like, I went to the site... and it doesn't exist anymore.

Some cause. Hmph. What if people wanted to donate, like myself?

[Jaded_Whisper]

I completely agree. That is pathetic.

[ErgoProxy]

I'm gonna shoot them another e-mail at the foundation asking about the site, hopefully someone will respond.

ETA: sent it, says to expect an answer within about 2 weeks.

[Katya]

That sucks, man. I was hoping she'd do some more stuff for it now that she's off tour and such, but I guess not. :(

[Sabercat]

I'm gonna shoot them another e-mail at the foundation asking about the site, hopefully someone will respond.

ETA: sent it, says to expect an answer within about 2 weeks.

2 weeks? What is this? Soviet Russia?

Anyway, I hope Dan's right and it'll be back up in a few days.

[Katya]

Hey, looks like it's back up! w00t! :)

[Rakheem]

Hey, looks like it's back up! w00t! :)

It's not to me :S Still says Domain is expired. :(

[Angel Of Grief]

The site is back up and running.

[Katya]

It's not to me :S Still says Domain is expired. :(

Try Ctrl + F5 to fully refresh. If you're on a Mac, though, clear your cache or cookies for the site and try again. :)

[Worm Baby]

Site is dead again. Do they care at all about this thing anymore? Hasn't this happened a lot over the years? Suuuuck. :rolleyes:

[team-amy]

who is Tod? Amy keeps talking about him who is he?

[team-amy]

I am sorry I forte TOD was a person but I read Amy’s and Terry post wrong
He had said “That besides in his life the stroke TOD was the most amazing thing to happen in his life.” I forte he was talking a bout a person my bad